Rett Syndrome Awareness Month
As October arrives, most of us begin thinking about the fast approaching holidays. It’s the time of year when we look forward to sharing our precious time with family and friends, and enjoying the traditions and festivities of the season.
Additionally, it’s a time of year where many of us want to extend our generosity beyond traditional gifts through the giving of our time and money to those causes that have special meaning to us, for whatever reasons.
For us, October carries a great importance because it’s Rett syndrome awareness month.
What’s the significance to us? Because, it was just 23 years ago when our family first met a wonderful young lady named Bea. Ever since that introduction, she’s been a blessing in our lives along with her parents, grandparents, and sister.
If you’re not familiar with Rett syndrome, it’s a rare non-inherited genetic postnatal neurological disorder that occurs almost exclusively in girls and begins to show its effects in infancy or early childhood. It can often be misdiagnosed as autism or cerebral palsy, because it causes problems in brain function that are responsible for cognitive, sensory, emotional, motor, and autonomic function. These can then impact learning, speech, sensory sensations, mood, movement, breathing, cardiac function, and even chewing, swallowing, and digestion.
As one can imagine, Rett syndrome can present numerous challenges to those living with the disease, as well as those caring for them. But with therapy, assistance, and endless amounts of unconditional love, every single one of them can benefit greatly by participating in typical life activities like school, social, educational, and recreational programs. Even our Bea was able to attend her first prom like any other young girl her age.
Years ago we made the decision to do something to not only help raise awareness about Rett syndrome, but to raise funds for the incredible research underway.
We continue each year to give 10% of all of our sales for a week in October to benefit Rett Syndrome research for years to come.
While we know our contribution is a very small one, we like to think that we’ve been a part of helping further research, and ultimately finding a cure for Rett syndrome.
The amazing news is that researchers have been making wonderful strides over the past several years. Their research strategy has yielded unprecedented results. If you’d like to learn more, visit www.rettsyndrome.org for ways you can support this important cause.
We are incredibly grateful to all of you for your continued support. Thank you on behalf of all of us, and most importantly, our lovely Bea and her family.