Viewing posts tagged rett syndrome.

A Season for Giving. Rett Syndrome and the Angel Plate

As October arrives, most of us begin thinking about the fast approaching holidays. It’s the time of year when we look forward to sharing our precious time with family and friends, and enjoying the traditions and festivities of the season.

Additionally, it’s a time of year where many of us want to extend our generosity beyond traditional gifts through the giving of our time and money to those causes that have special meaning to us, for whatever reasons.

For us, October carries a great importance because it’s Rett syndrome awareness month.

What’s the significance to us? Because,...

October is Rett Syndrome Awareness Month

2016 Angel Plate
October is Rett Syndrome awareness month. Each year we call attention this rare disease. 

One of our greatest blessings is to have grown up with a family that faces the daily challenges and incredible joy of raising a daughter with Rett Syndrome. For those that may not be familiar with this condition, Rett Syndrome is a neurological disorder that is first recognized in infancy and seen almost always in girls. It causes problems in brain function that are responsible for cognitive,...

Giving Thanks - The Angel Plate and Rett Syndrome

The month of November starts the hustle and bustle of the holiday season at Modigliani. As we are stocking new holiday items and getting ready for the busy season, we like to kick everything off by remembering what is most important to us, friends and family.

One of our greatest blessings is to have grown up with a family that faces the daily challenges and incredible joy of raising a daughter with Rett Syndrome. For those that may not be familiar with this condition, Rett Syndrome is a neurological disorder that is first...

Hope for Healing This Holiday Season

When you’re close to the finish line in a race, it is not a sign that you need to slow down. It’s a sign that you need to speed up.

Rett Syndrome is a rare neurological disorder that strikes girls at an early age. A dear friend of our family has been afflicted with the disease, making us so grateful for the fact that researchers are on the verge of a cure. With therapies that promise to actually...