Rett Syndrome Awareness Month

Julie Jurden

As October arrives, most of us begin thinking about the fast approaching holidays. It’s the time of year when we look forward to sharing our precious time with family and friends, and enjoying the traditions and festivities of the season.
Additionally, it’s a time of year where many of us want to extend our generosity beyond traditional gifts through the giving of our time and money to those causes that have special meaning to us, for whatever reasons.

For us, October carries a great importance because it’s Rett syndrome awareness month.

What’s the significance to us? Because, it was just 22 years ago when our family first met a wonderful young lady named Bea. Ever since that introduction, she’s been a blessing in our lives along with her parents, grandparents, and sister.

If you’re not familiar with Rett syndrome, it’s a rare non-inherited genetic postnatal neurological disorder that occurs almost exclusively in girls and begins to show its effects in infancy or early childhood. It can often be misdiagnosed as autism or cerebral palsy, because it causes problems in brain function that are responsible for cognitive, sensory, emotional, motor, and autonomic function. These can then impact learning, speech, sensory sensations, mood, movement, breathing, cardiac function, and even chewing, swallowing, and digestion.

As one can imagine, Rett syndrome can present numerous challenges to those living with the disease, as well as those caring for them. But with therapy, assistance, and endless amounts of unconditional love, every single one of them can benefit greatly by participating in typical life activities like school, social, educational, and recreational programs. Even our Bea was able to attend her first prom like any other young girl her age.

Years ago we made the decision to do something to not only help raise awareness about Rett syndrome, but to raise funds for the incredible research underway.

Hence the Angel Plate was born.

We started by producing one each year with the idea to create a set of four that could be displayed together on a wall or shelf, or used during special occasions. We explained the significance to our artists and partners in Italy, and they have been honored to design and produce Piastra Angelo with great care. These plates are a one-of-a-kind gift, limited in number and signed by the artist. 100% of the profits go to Rett syndrome research. You can order a single plate or collect all four as we still have a few from the previous years available. In addition we will continue each year to give 10% of all of our sales for a week in October to benefit Rett Syndrome research for years to come.

While we know our contribution is a very small one, we like to think that we’ve been a part of helping further research, and ultimately finding a cure for Rett syndrome.

The amazing news is that researchers have been making wonderful strides over the past several years. Their research strategy has yielded unprecedented results. If you’d like to learn more, visit www.rettsyndrome.org for ways you can support this important cause.

We are incredibly grateful to all of you for your continued support. Thank you on behalf of all of us, and most importantly, our lovely Bea and her family.

Read more →

A Season for Giving. Rett Syndrome and the Angel Plate

Julie Jurden

As October arrives, most of us begin thinking about the fast approaching holidays. It’s the time of year when we look forward to sharing our precious time with family and friends, and enjoying the traditions and festivities of the season.

Additionally, it’s a time of year where many of us want to extend our generosity beyond traditional gifts through the giving of our time and money to those causes that have special meaning to us, for whatever reasons.

For us, October carries a great importance because it’s Rett syndrome awareness month.

What’s the significance to us? Because, it was just 18 years ago when our family first met a wonderful young lady named Bea. Ever since that introduction, she’s been a blessing in our lives along with her parents, grandparents, and sister.

If you’re not familiar with Rett syndrome, it’s a rare non-inherited genetic postnatal neurological disorder that occurs almost exclusively in girls and begins to show its effects in infancy or early childhood. It can often be misdiagnosed as autism or cerebral palsy, because it causes problems in brain function that are responsible for cognitive, sensory, emotional, motor, and autonomic function. These can then impact learning, speech, sensory sensations, mood, movement, breathing, cardiac function, and even chewing, swallowing, and digestion.

As one can imagine, Rett syndrome can present numerous challenges to those living with the disease, as well as those caring for them. But with therapy, assistance, and endless amounts of unconditional love, every single one of them can benefit greatly by participating in typical life activities like school, social, educational, and recreational programs. Even our Bea was able to attend her first prom like any other young girl her age.

Years ago we made the decision to do something to not only help raise awareness about Rett syndrome, but to raise funds for the incredible research underway.

Hence the Angel Plate was born.

In 2014, we started by producing one each year with the idea to create a set of four that could be displayed together on a wall or shelf, or used during special occasions. We explained the significance to our artists and partners in Italy, and they have been honored to design and produce Piastra Angelo with great care. 

2017 marked the final year for the Angel Plate Collection. These plates are a one-of-a-kind gift, limited in number and signed by the artist. 100% of the profits go to Rett syndrome research. You can order a single plate or collect all four as we still have a few from the previous years available. In addition we will continue each year to give 10% of all of our sales  for a week in October to benefit Rett Syndrome research for years to come.

While we know our contribution is a very small one, we like to think that we’ve been a part of helping further research, and ultimately finding a cure for Rett syndrome.

The amazing news is that researchers have been making wonderful strides over the past several years. Their research strategy has yielded unprecedented results.

If you’d like to learn more, visit www.rettsyndrome.org for ways you can support this important cause.

We are incredibly grateful to all of you for your continued support. Thank you on behalf of all of us, and most importantly, our lovely Bea and her family.

Read more →

Those Angels Among Us | Rett Angels

Julie Jurden

As October arrives, most of us begin thinking about the fast approaching holidays. It’s the time of year when we look forward to sharing our precious time with family and friends, and enjoying the traditions and festivities of the season.

Additionally, it’s a time of year where many of us want to extend our generosity beyond traditional gifts through the giving of our time and money to those causes that have special meaning to us, for whatever reasons.

For us, October carries a great importance because it’s Rett syndrome awareness month.

What’s the significance to us? Because, it was just 18 years ago when our family first met a wonderful young lady named Bea. Ever since that introduction, she’s been a blessing in our lives along with her parents, grandparents, and sister.

If you’re not familiar with Rett syndrome, it’s a rare non-inherited genetic postnatal neurological disorder that occurs almost exclusively in girls and begins to show its effects in infancy or early childhood. It can often be misdiagnosed as autism or cerebral palsy, because it causes problems in brain function that are responsible for cognitive, sensory, emotional, motor, and autonomic function. These can then impact learning, speech, sensory sensations, mood, movement, breathing, cardiac function, and even chewing, swallowing, and digestion.

As one can imagine, Rett syndrome can present numerous challenges to those living with the disease, as well as those caring for them. But with therapy, assistance, and endless amounts of unconditional love, every single one of them can benefit greatly by participating in typical life activities like school, social, educational, and recreational programs. Even our Bea was able to attend her first prom like any other young girl her age.

Years ago we made the decision to do something to not only help raise awareness about Rett syndrome, but to raise funds for the incredible research underway.

Hence the Angel Plate was born.

In 2014, we started by producing one each year with the idea to create a set of four that could be displayed together on a wall or shelf, or used during special occasions. We explained the significance to our artists and partners in Italy, and they have been honored to design and produce Piastra Angelo with great care. 

2017 marks the final year for the Angel Plate Collection. These plates are a one-of-a-kind gift, limited in number and signed by the artist. 100% of the profits go to Rett syndrome research. You can order the new 2017 plate, or you can collect all four as we still have a few from the previous years available. 

While we know our contribution is a very small one, we like to think that we’ve been a part of helping further research, and ultimately finding a cure for Rett syndrome.

The amazing news is that researchers have been making wonderful strides over the past several years. Their research strategy has yielded unprecedented results, including that researchers now know what causes Rett and have proven it’s reversible. For the first time, they potentially have a treatment, Trofinetide, which could profoundly impact the disorder. Trofinetide increases the amount of connections in the brain that control thought and movement. Trials have shown improvements after less than two months, and because of the way it works, they could expect to see continued improvements over a longer period of time. Trofinetide potentially offers measurable change to every person living with Rett syndrome.

It’s for research such as this that we continue to bring attention to Rett and look for ways to raise funds for more critical research of this nature.

If you’d like to learn more, visit www.rettsyndrome.org for ways you can support this important cause.

We are incredibly grateful to all of you for your continued support. Thank you on behalf of all of us, and most importantly, our lovely Bea and her family.

Read more →

October is Rett Syndrome Awareness Month

Julie Jurden
2016 Angel Plate
October is Rett Syndrome awareness month. Each year we call attention this rare disease. 

One of our greatest blessings is to have grown up with a family that faces the daily challenges and incredible joy of raising a daughter with Rett Syndrome. For those that may not be familiar with this condition, Rett Syndrome is a neurological disorder that is first recognized in infancy and seen almost always in girls. It causes problems in brain function that are responsible for cognitive, sensory, emotional, motor and autonomic function. These can include learning, speech, sensory sensations, mood, movement, breathing, cardiac function, and even chewing, swallowing, and digestion.

Rett syndrome presents many challenges, but with love, therapy and assistance, those with the syndrome can benefit from school and community activities well into middle age and beyond. They experience a full range of emotions and show their engaging personalities as they take part in social, educational, and recreational activities at home and in the community.  

In order to do our small part to help find a cure for Rett Syndrome, we have a special A​ngel P​late created each year. Proceeds from this limited edition signed plate go to help find a cure for this disease that effects so many and is within grasp. Financially, we hope our small contribution will help further the cause but more importantly, we hope our Angel Plate creates an awareness and promotes support for Rett Syndrome girls and their families. 

We invite you to join us in finding a cure for Rett Syndrome. You can view the 2016  Angel Plate design here. We have only 50 created each year, making this a very special gift for someone you love.
If you are interested in purchasing the entire collection of Angel Plates, we have a limited number of previous year's plates.

To donate directly to IRSF, click here

Read more →

Giving Thanks - The Angel Plate and Rett Syndrome

Julie Jurden
The month of November starts the hustle and bustle of the holiday season at Modigliani. As we are stocking new holiday items and getting ready for the busy season, we like to kick everything off by remembering what is most important to us, friends and family.

One of our greatest blessings is to have grown up with a family that faces the daily challenges and incredible joy of raising a daughter with Rett Syndrome. For those that may not be familiar with this condition, Rett Syndrome is a neurological disorder that is first recognized in infancy and seen almost always in girls. It causes problems in brain function that are responsible for cognitive, sensory, emotional, motor and autonomic function. These can include learning, speech, sensory sensations, mood, movement, breathing, cardiac function, and even chewing, swallowing, and digestion.

Rett syndrome presents many challenges, but with love, therapy and assistance, those with the syndrome can benefit from school and community activities well into middle age and beyond. They experience a full range of emotions and show their engaging personalities as they take part in social, educational, and recreational activities at home and in the community.  

In order to do our small part to help find a cure for Rett Syndrome, we have a special 
​A​ngel P​late created each year. Proceeds from this limited edition signed plate go to help find a cure for this disease that effects so many and is within grasp. Financially, we hope our small contribution will help further the cause but more importantly, we hope our Angel Plate creates an awareness and promotes support for Rett Syndrome girls and their families. 

We invite you to join us in finding a cure for Rett Syndrome. You can view this year's Angel Plate design here. We have only 50 created each year, making this a very special gift for someone you love. 

To donate directly to IRSF, click here

Read more →